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What started out as a site to update on our daughter's cancer has thankfully grown into a site to update on our beautiful family of four. Enjoy our journey...

Monday, June 25, 2007

sneak peak

There is a book out there called When Your Child has Cancer... Reflections from a Mother's Heart. Many times I have been asked "what is it like" having a child with an illness such as NB. Well, I know that I can never portray all the feelings and emotions that go along with it - I thought that these things listed below said it better than I ever could! A friend told me about this book, I have ordered it, but not yet received it. I am sure I will post more once I have the opportunity to read it for myself. I hope you all know that you can ask me any question, any time - I don't want you to feel that you just have to "guess" what we are thinking/feeling, if you want to know anything, just ask!

*I must start by saying that I (sadly) can relate to each and everyone of these points!*
When your child has cancer...

You cry a lot, and then you cry some more.

You have a hard time focusing on more than one thing at a time.

You carry hand sanitizer with you wherever you go.

You lose your short term memory and your ability to multitask.

Your children watch a lot of movies and videos and you don't feel guilty.

You have times when you fall apart for no apparent reason.

You are proud of your child for being so strong, brave and resilient.

You cry when your child loses their hair, and cry some more when it comes in a completely different color.

You forget what normal feels like, and then realize it needs a new definition.

You find that people elevate you to the revered position of "super-mom" but then you don't really have a choice, do you?

You allow yourself to indulge in magazines and DVD's that you enjoy, just so you can have a temporary break from reality.

You appreciate family gatherings and holidays more than you ever have in the past.

You don't have the emotional energy to return phone calls.

You need to know your child's ANC...ASAP.

You find yourself casually detailing what has happened in the last two weeks to a friend and then notice she is getting teary-eyed and trying to grab your hand.

You are surprised at the kindness of people that you hardly even know.

You would do anything to trade places with your child.

You feel an instant bond with any mother of a bald-headed child.

You appreciate every moment of life like never before

1 comment:

Anonymous said...

WOW! Well stated.