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What started out as a site to update on our daughter's cancer has thankfully grown into a site to update on our beautiful family of four. Enjoy our journey...

Thursday, April 12, 2007

Hearts of Courage

My son Marcus survived his second heart surgery with complications that resulted in his need for a Tracheotomy and Ventilator support.

What was suppose to be a two-week stay at the hospital turned into eight hard, long grueling months of commuting from work to hospital, overnight stays, cafeteria food, and sleepless nights in a chair by Marcus’ bedside.

I have a child with a tracheotomy and a ventilator. I needed to be able to accept that or I could not bring my son home.

When Marcus came out of surgery, and I saw him for the first time, I did not cry…I looked at him with all the love I had before the trach and I knew that I had made it. I knew that I would be able to go through this with him and we would somehow move on with our lives.

About 8 months later, we were at a doctor’s visit and as we wheeled Marcus into the crowded elevator, a woman next to me gasped, “Oh, what’s wrong with him?” as she stared at my son.

Puzzled I looked at my child, I did not notice anything out of the ordinary, no hair was out of place and I did not see anything oozing out of his nose, he was asleep.

“What’s wrong? Nothing is wrong, he’s asleep.”

I realized then that I was exactly where I needed to be.

Brigitte C. Ramirez
Marcus’ mom.

1 comment:

sadie said...

it's amazing to me still how blunt people (especially adults) can be. the number of times i was asked how my son broke his legs, his teachers at daycare, still worrying about his braces, while the children there just accept them. he has a cohort there who likes to help him "hide" them behind coats and things, drives the teachers batty.

it's we as parents who are able to look at our chilren as unchanged beings dispite of their disabilities or illnesses that make us the strong ones. *hugs*