"Praise God from whom all blessings flow..."
I am sorry for not posting earlier - it has been a long day.
We have received positive news from Omaha today. Charli's tumor has not grown, in fact it has recessed some. We do not know the exact percentage or size of the tumor, but we were told that it is in deed a smaller mass than six weeks ago. THANK GOD.
This means a few things for us. #1 - it means that there was no growth, which would have been a huge indicator that the mass was still active. #2 - the mass could have stayed the same, which would have left us in the same boat as six weeks ago...not knowing what to do next. #3 - I am going to try to believe that if it is decreasing in size that it will continue to do so, and be less and less active as time goes on.
Please know that we are SO excited and feel so blessed, it is hard to put into words. At the same time, we are still guarded because we will go back again in six weeks and again in three months. And, truly any appointment could turn our life around. I know that we can not dwell on that - and we won't...but it will always remain in our minds.
Thank you for all of your prayers. You must know that we believe in the power of prayer, and know that your love and support has helped our family in ways we will never know.
Our journey is not over, although it may seem to be. Charli will have at least one more surgery to have her port removed, possibly after her three month check. Today as we were getting ready to send Charli off for her CT, I realized that it doesn't get easier with time. I thought that after seeing Charli go through much worse, and knowing that she wouldn't be pain - today would be "seamless"...but it wasn't.
On a happier note - we feel so pleased and so blessed with our news today...we literally don't know what to do!!
Our life is forever changed, and so are the lives of many people around us. Through all of this I hope we have done something to raise awareness to not only neuroblastoma, but also childhood cancer. In the beginning I remember writing that we did not only want to survive NB, but become better people because of it. That is still my goal.
GOD BLESS ALL OF YOU, and THANK YOU FROM THE BOTTOM OF OUR HEARTS FOR ALL OF YOUR LOVE, SUPPORT, PRAYERS, and DEDICATION TO OUR FAMILY - and NEVER GIVING UP ON CHARLI.