I can't believe I forgot to mention that Charli is walking! I have meant to do that many times, but time has gotten away from me. She is keeping herself busy, and changing so much day to day!
While we were eating lunch today (which she is eating very well, by the way!) we talked about all the things we are thankful for as a result of getting a good report at our last two appointments, and I want to share them with you! At the time, we just did what we had to do. Now looking back at everything we had to do to not only prepare for the trip, but also 'survive' the trip...it's exhausting!
WE ARE THANKFUL FOR:
-no more chemo
-no more regular port access
-no more daily shot to raise her counts (given by Chad and I)
-no more bactrium twice a day, three days a week (which Charli grew allergic to)
-no more trips to get her finger poked twice a week
-no more waiting for hours in the clinic, waiting to be admitted...up to five hours or MORE
-no more diaper changes every two hours, waking Charli every time she feel asleep
-no more fighting with Charli to eat while in the hospital
-no more pawning our dogs off at Twin River Vet to be kenneled while we are gone
-no more stray hairs falling out of Charli's head
-no more trips to Omaha with that "pit" in our stomach
-no more packing bags of toys, trying to keep Charli occupied
-no more keeping Charli at home, while everyone else gets to "go out and play"!
-no more "Friday outside only" visits to daycare
-no more staying home all day for Charli
I could go on for hours, talking about all the things we are thankful for, but I think you get it! Her cancer has given us many things to be thankful for too, we are a much closer family than we were before she got sick. We are also much more aware of germs and keeping everything clean for Charli as well as ourselves! I feel we are more understanding, and supportive than we may have been before. And, I pray we are more accepting...all of us.
I would like to mention, and give BIG thanks to my sister Rachelle. She and her family are taking part in the Lunch for Life campaign (link to the right). They are donating money each month, and the money goes to fund neroblastoma research. By doing this, the organization has created a tree for Charli, each time money is donated in her honor she gets an "ornament" to mark the donation. I think it is a great way to raise money for the cause, and an easy and affordable way to do this. So, thank you Rachelle, Shaun, Ryen, and Macey for donating in Charli's honor, it is one of the best gifts we have been given. I encourage anyone who would like to financial help the fight for childhood cancer, to give directly to a group like this. If you ever have any questions on the organization, please ask and I will do whatever I can to find out more about them. There are many great groups out there giving 100% of their funds to research.
I got this bubble machine for my birthday! Thank you Mia!!
I really like this corner of my bed!
fun...a NEW toy!!!??!!!
brrr, but it feels nice!
woosh...all clean now!!
I'm not ready to put it away :-(
umm, Dad...does mom know you have me up here?!
wait...I am NOT supposed to eat the spoon too?!!
I like my new chair, mommy and daddy gave it to me for my birthday!