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What started out as a site to update on our daughter's cancer has thankfully grown into a site to update on our beautiful family of four. Enjoy our journey...

Tuesday, May 08, 2007

reality check...1,2,3

Today started out as a really great day, and it ended okay...but it was the in between that was a little rough.

Charli is feeling pretty well so far. She is doing so many cute things. She likes to stand and walk, while holding my fingers. She laughs and giggles, just like a “little girl”. She sparkles when her daddy walks into the room and she loves to touch Kasper’s fur!

She did get sick twice today, but nothing major. Nothing that a moms hand couldn’t wipe away!

I left Charli for about 5 minutes today(daddy stayed home with her). When I got home Chad pointed out that Charli’s hair was coming out in chunks. I was sick. A few weeks ago you might remember me saying that we say hair on Charli’s sheets. This is different; there are ‘chunks’ of hair on her dress tonight. I ran my fingers through her soft baby hair, and about 20 pieces came with it.

While I did it, she laughed. I told Chad that if it didn’t bother her…we shouldn’t let it bother us. He went out to mow, and I sat on the couch and cried. This disease is just eating away at her little by little…and this is just a reminder of it all.

I know that it is just hair…so please don’t tell me that. It is more than that – it is a symbol of all that is going on. It is emotional, and it sucks. Real literal huh, there is no better word…it just sucks!

So, I called my great friend Linda…and she felt bad with me. Sometimes it is nice to just have someone be sad with you once in awhile…but in true “Linda” fashion, she picked me right back up again!

So, now my balding baby will sport her hats and bows more often – and look incredibly stylish doing it! All I ask is when you see her; you don’t say…well it is just hair - because to a mother of a cancer fighter, it is much more than just the hair.

I haven’t posted pictures in far too long…so I better catch up!



life is always better when grandpa is around!

look what's down there!


you're silly mom...give me my toy back!


hurry up and take the pictures, I am on the go!


but I think I will rest first!
this is the most expensive $12.00 John Deere tractor ever!!
(grandpa preister bought it at the auction for over $100!! -- thanks grandpa!)

mommy told me this picture was for the 'hemmer boys'!


"sassy just like momm"...why do people laugh when they read this?!

ahh, look mom. I am TOTALLY standing!

thanks for the new hat mom :-)


9 comments:

Anonymous said...

Brenda and Chad,
Grandma Borg keeps us updated about baby Charlie and your web site is great. She is such a sweetie-and I am sure life really sucks for you. I cry when I read your blogs. We keep praying for you all. Have faith that this too will pass and life will improve. Take one day at a time. NG friends

AndreaChad said...

Charli...what a CUTE baby you are!!! I love to see your pics b/c you are always trying something new to impress your mom and dad! Keep up the smiles! xoxo

Anonymous said...

I smiled too when I saw the Sassy like Mom shirt. All the spunk and determination you had as a youngster is a strength for you now. You have always been special. Thanks for keeping up the blog. People in MN are sending letters to our national representatives.

Anna said...

Well she's not letting anything get her down :)
While it may be "just hair" to most people, I can empathize where your coming from because for most of these kids its the only outward sign that something is wrong. She will look beautiful either way. You're allowed to complain as this is the hardest thing any parents could ever go through. Praying hard for you three and will keep smiling at those adorable pictures. Hope treatment continues without any major bumps in the road. Anna

ps - I love the "looks what's down there" picture, made me laugh.

Anonymous said...

She is so beautiful! Her smile says it all. What a strong, precious little girl. You are all in our prayers and thoughts daily. We love you!

Traci, David, Peyton and McKenna

Anonymous said...

She is SO darn cute and happy! I love the pictures, thank you for posting. Hugs and prayers!
-Courtney

Anonymous said...

HI PREISTER'S,
THANKS 4 POSTING NEW PICS-GOSH SHE IS GONNA BE RUNNING AROUND THE HOUSE IN NO TIME:<)!!THAT REALLY SUCKS THAT SHE IS LOSING HER HAIR BUT,THAT MEANS THE TREATMENT IS WORKING RIGHT?! WELL, KEEP UP THE GOOD WORK MOMMY N DADDY YOUR DOING A GREAT JOB AS PARENTS!! XO XO XO -WIDHALM'S

Anonymous said...

We've been where you are & we know your emotions. God will get you through all of it & Charli's hair we be more beautiful than ever! As difficult as our ordeal was with Addie, it has given us the opportunity to be an encouragement to others. Charli will be an example for untold numbers with her innocence & her cheerfulness. Just when one of us "old folks" starts feeling sorry for our aches & pains, we will see her smiling face & know that we can never know the extent of her pain, but she keeps on smiling! God will get you through!

Sandy Dean
Abilene, TX
klsdean@aol.com

Stacy from Michigan said...

Hi Brenda, Chad and Charli,
I found this site from Penelopes. I have a friend that has a daughter that was diagnosed with NB when she was 13 months old...Zoe will be 4 this September!!! Believe in the Power of Prayer!!! God Bless You All...I will say a prayer for Charli (and her Mom & Dad) tonight.