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What started out as a site to update on our daughter's cancer has thankfully grown into a site to update on our beautiful family of four. Enjoy our journey...

Thursday, May 17, 2007

baby bear

I wanted to post an update, but I don’t have a lot to say. I would like all of you to take a few minutes to visit Penelope’s site (there is a link to the right). She is an amazingly strong girl who is having a terribly hard time right now. Please visit her site, learn a little about her, and if you’d like – post a comment for her parents to find comfort in. They will do amazing things in finding a cure for NB, I just know it.

Charli has been having a rough day. We aren’t sure why. She slept horribly bad last night – like up 12+ times from 11:00 – 5:00, bad. I can’t decide if it was a “pain” cry, or a “come give me some love” cry. She didn’t eat or sleep that great today either. I know that all kids have ‘off’ days…but I will always have this fear that the tumor is growing when she acts like this. We won’t truly know until the MRI in a few weeks.

Treatment number four is on for next week. I pray that it is as ‘gentle’ as can be on her system. Treatment #2 was the worst to date, and knowing that it “could” be like that again is hard.

As of today I have had 12 people offer to donate their locks!! That is awesome, that is TEN FEET OF HAIR!!!!!! These 12 people are a mixture of adults and children. Amazing that kids would be so willing to help, isn’t it? Thank you to those of who you have offered your hair. I know that it is only hair, but to those who receive the wigs, it is so much more – so much more.

1 comment:

Anonymous said...

I am so sorry to hear that Charli was having a bad day/night. And I pray that today is better for all of you. Sounds like the "locks of love" is going good.
We will keep praying for better days. GMA