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What started out as a site to update on our daughter's cancer has thankfully grown into a site to update on our beautiful family of four. Enjoy our journey...

Thursday, October 14, 2010


I am following a little girl who has recently been dx with cancer and this is a portion of her latest post. It is just reminder of the things that come along with this monster for our kids. I hope it inspires you to want to fight a little harder...

I met with another Dr. today (I honestly can’t even remember what his title is). They watch Jordyn’s pituitary glands, adrenal glands and thyroid. The chances of her having weight issues, height issues and puberty issues are very likely, they will monitor her closely for life and if she needs medicine to regulate any of them they will discuss early on so she will not have any lifelong impacts. Jordyn will likely have problems conceiving children on her own, even though her ovaries are not being affected whatever triggers your brain to talk to your ovaries will be, so she will need help when she wants to have children (she will be able to conceive but possibly not naturally). Just think of the list of things I need to talk to my beautiful daughter about as she grows up…Jordyn when you grow up your teeth are going to be ruined, you may be blind in your left eye, your bones may not grow the same in your face, you may gain weight easily or not gain enough weight, you may not grow correctly and when you’re ready to have children don’t get your hopes up because it’s going to be hard for you....this is like some cruel joke…I really, really hate cancer more and more every single day.

1 comment:

Anonymous said...

When I read this update after she had posted it, I cried. :( Glad you're following their journey as well.
Prayers for Jordyn!