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What started out as a site to update on our daughter's cancer has thankfully grown into a site to update on our beautiful family of four. Enjoy our journey...

Friday, July 18, 2008

closer to a cure!!!

We are within reach of having the Conquer Childhood Cancer Act passed, it only needs one more signature...thank you very much President Bush!!!

Thank you to everyone who sent letters, emails, or made phone calls on behalf of this!! I can remember the day that I sent all my much heart went into each one - what great news to receive this news!!

$30 million dollars will be given for the next five years to go towards childhood cancer solely! Imagine all the children who will be saved because of this...because they heard our cries!! I have goosebumps this is such BIG news!!

The "official" release follows:

CureSearch Praises Passage of Landmark "Conquer Childhood Cancer Act" by Unanimous Consent in the United States SenateChildren with Cancer and Their Families to Benefit from Legislation

July 17, 2008 (Bethesda, MD) - CureSearch National Childhood Cancer Foundation salutes the United States Senate for its passage of the Conquer Childhood Cancer Act, which promises to significantly increase federal investment into childhood cancer research.

The bill, first introduced in the Senate by Senators Jack Reed (D-RI) and Norm Coleman (R-MN), passed by unanimous consent, echoing a similar 416-0 vote June 12th in the U.S. House of Representatives. Senator Ron Wyden (D-OR) requested, and received, this unanimous consent on the Senate floor.

The bill authorizes $30 million annually over five years, providing funding for collaborative pediatric cancer clinical trials research, to create a population-based national childhood cancer database, and to further improve public awareness and communication regarding available treatment and research for children with cancer and their families.

"Too many young people's lives were cut short by cancer, but their hopes were not," said Reed. "We have made great advances in treating cancer, but there is still much more to be done. The Conquer Childhood Cancer Act will deliver much needed hope and support to children and families battling cancer and more resources for vital pediatric cancer research programs."
Senator Coleman, an original sponsor, noted that the legislation passed unanimously in both Houses of Congress, and lauded the overwhelming bi-partisan support of the measure, which addresses a critical national health issue that is finally receiving the attention it deserves.
"Passage of the Conquer Childhood Cancer Act in the Senate is a monumental step in the fight against childhood cancer," said Coleman. "I am proud that my colleagues were able to come together and pass legislation that will provide the resources to not only support children and families with childhood cancer, but also find a cure."

CureSearch supports the life-saving research of the Children's Oncology Group, the world's premier cancer research collaborative. Treating 90 percent of children with cancer, the Children's Oncology Group includes more than 5,000 experts in childhood cancer research and treatment, located at more than 200 leading children's and university hospitals across North America.

"The Conquer Childhood Cancer Act allows for translation of the very best research discoveries into clinical evaluation and practice, in order to improve the cure rates for all children with cancer," stated Gregory Reaman, MD, Chair of the Children's Oncology Group.
"On behalf of my colleagues in the Children's Oncology Group and the children with cancer and their families who are our partners in clinical research, we thank our leaders in the Senate. Only research cures childhood cancer."

"We applaud the leadership of Senators Reed and Coleman and their colleagues in the Senate who through the passage of this bill have made finding the cure for childhood cancer an urgent national priority. Together with their colleagues in the House, Congress has given childhood cancer the attention and support that is long overdue and much needed," said Stacy Pagos Haller, Executive Director of CureSearch.

Having passed both the House of Representatives and the Senate unanimously, the bill now heads to the White House, where President Bush is expected to sign it into law.


ChandraJoy said...

That is wonderful news!!

I love the new layout!

Anonymous said...

I want to cry for JOY!!!!!! Nice to see you at the fair.

Anonymous said...


Anonymous said...

Whoooohoooo!!!! I was so excited when I got the email, too! Once it is signed I think I'll send President Bush a BIG thank you!!!!!

Grma P

AJay Piniewski said...


I am the Dad of AJ, a 14 year old cancer victim. I wanted to make you aware (maybe again) and enlist your help for the Cure Childhood Cancer petition! Our goal is to have a one-hour special on network TV devoted solely to CHILDHOOD CANCER to raise awareness. And publish a parent-written book about our miraculous children, with all proceeds going to CureSearch.

The GREAT news is that CureSearch (story on the Petition), LIVESTRONG(story on the Petition) and Alex’s Lemonade Stands have ALL written about the Petition on their websites! And TX Children’s and DUKE have both allowed us to setup paper versions inside the hospitals! So this is a SERIOUS EFFORT AND WE ARE MAKING HEADWAY! Right now we are at over 11,000 signatures! But we need your help! If you can please make your readers aware, email it around, and give just a little publicity, I know we can make this happen!

Thanks again,
AJs Dad
CarePage - AJsSpace
Childhood Cancer - Petition to Raise Awareness and Funding for a CURE!