Well, today is Tuesday and we hoped to be home by now…but we aren’t! Charli didn’t have a great day yesterday and things got pushed back. She was scheduled for a CT scan, but because she hasn’t been a good eater – she wouldn’t drink the bottle with the contrast in it. This meant she had to have a tube put down her nose into her tummy. We are still waiting on those results. However, we did get the all clear on her bone marrow testing…the cancer has not spread into that.
Charli had three days of chemo treatments this trip, that was something we were not aware of. But she has done great so far. She hasn’t eaten that well since her first treatment, but she wasn’t eating that great before either. So, it is hard to tell if it is from the chemo or not.
We were told yesterday by her cancer treatment team that they do not want her to go back to her regular daycare. This saddens me for several reasons. We LOVE our daycare. Lynn and Lonnie are, we believe, the best providers in town…and to loose them breaks my heart. But, we must do what is best for Charli. I will be staying home for the most part, but will go into work as I am able…I am thinking about two days a week or so. We will see what we can work out. I am also sad that Charli won’t be able to be around kids very much over the next six months or so…she just lights up when a child is around. As the doctor said “if you can guarantee that the child is not sick or carrying a virus, go ahead and let them play”….that pretty much sealed the deal. It isn’t worth Charli getting very sick – it is only a short period of time, right? They said that she will probably end up getting sick from her own body, that is how sensitive she will be.
We are hoping that within 6 months the chemo will be done, and possibly the surgeries that will go with this will be done too! I am sad that she will miss out on so much of her first summer…but know she will have a lifetime of summers to make up for it!!!!
Not a lot of new details to report…once I get home I will post some new pictures of her for you all to see!
Thank you for all the nice notes…we have the best friends in the world!